Ways to Help

Our mission is to advance research for more research and
ultimately a cure for Dystonia. Click here to find out how
you can support dystonia research!

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Chuck's Run 2017

Chuck's Run for Dystonia is taking place on June 4, 2017.
Click here to see what you can do to participate.

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Join a Support Group

The DMRF Canada Support Group Network provides an
opportunity for people with dystonia to come together to
support one another, raise awareness, and fund-raise. Click
here to find a support group near you!

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Patient Grant

To provide financial assistance for Canadian residents who
are living with dystonia and committed to furthering their
education. Click here to read more about eligibility
criteria and to fill out an application.

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E-newsletter

We release a bi-monthly e-newsletter on upcoming events,
research news and much more! Click here to subscribe to our
email list and receive our newsletters.

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What's Making News

October 19, 2016 - 11:47am

In this paper, published in the Journal of Neuroscience October 2016, Pedro Gonzalez-Alegre and his collaborators tested a hypothesis that cellular stress induced in the mouse brain will cause torsinA malfunction.

Although the mice under such stress did not show motor dysfunction, the investigators found several changes in brain metabolism, especially involving calcium. They uncovered an interaction between DYT1 genotype and calcium dynamics in neurons.

October 17, 2016 - 12:45pm

Going Forward Patient Package

The Dystonia Patient Care Package was made possible thanks to the Allergan International Foundation. 

September 12, 2016 - 10:48am

DMRF Scientific Director Dr. Mahlon DeLong has made pioneering discoveries in the neuroscience of movement and movement disorders that contributed greatly to the resurgence of functional stereotaxic surgery for these disorders. His long-time leadership at the DMRF has been transformational and inspired many in the dystonia field.

August 22, 2016 - 3:46pm

The focus of the Dystonia Survey was to provide a comprehensive evaluation of the experiences, fears, feelings and thoughts of Canadians living with dystonia, to help the DMRF Canada develop a long-term strategy for better supporting this patient population.

June 1, 2016 - 8:52pm

TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.

The Dystonia Medical Research Foundation (DMRF) Canada is the only organization that is dedicated to supporting the 50,000 patients in Canada that suffer from dystonia, a neurological movement disorder that affects the nervous system. Abnormal signaling from the brain causes muscles to tighten and twist involuntarily. There are several forms of dystonia, and dystonia may be a symptom of many diseases and conditions.

For over 40 years, the DMRF Canada has fought for those impacted by dystonia, working toward better treatments and a cure; funding research, providing advocacy and support, and raising awareness of this devastating disorder.

Join us, and be a part of the global effort to find a cure.

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