Save the Date: Chuck's Run for Dystonia - 5 km. Run/Walk

 Sunday, June 5, 2016
Registration: 9:00 a.m. to 10:45 a.m.
Run/Walk: 11:00 a.m. sharp
Location: High Park, Toronto

The Dystonia Medical Research Foundation Canada invites you to participate in Chuck's Run for Dystonia 5Km Run/Walk at High Park. 

In 2012 the DMRF Canada annual Freedom to Move for Dystonia 5 km Walk/Run was named “Chuck’s Run for Dystonia” after Charles (Chuck) Saundercook who was diagnosed in 1972 with generalized dystonia at the age of 12. In 1978 Chuck became one of the first Canadians to receive deep brain stimulation. He improved with the procedure but developed pneumonia and in his weakened state, died at age 16. In his final chapter, Chuck donated his body and brain to help others in furthering dystonia research. Since then the entire Saundercook family have been enduring supporters of dystonia awareness and research. 



1. Online: Click Here to Register or Volunteer

2. By phone:  416-488-6974

3. At the event - Please arrive at Registration before 10:30 a.m.

4. Mail to: DMRFC,305-121 Richmond St. W. Toronto, ON , M5H 2K1

If you wish to register and pledge manually you can Download a Registration/Pledge sheet

Fundraising Tips

While taking part in Chuck's Run for Dystonia is great support for the cause, we also hope you can raise critical research dollars by collecting pledges.  Start by setting up a pledge page so that people can donate to you electronically. Once your page is set up, you can begin fundraising.  Here are some tips to make raising money easier:

1. Start early!  
2. Send an email to friends with a live link to your Race Roster pledge page.  Let people know why raising money for dystonia is important to you. 
3. Keep a pledge sheet with you at all times and ask one person a day to sponsor you.  Collect the money at the time a pledge is made.
4. Let people know that any amount helps!  No donation is too small.
5. Use social media to link to your fundraising page and ask friends to share the link
6. Set a fundraising goal and use social media to share it
7. Motivate friends, family and co-workers to donate by promising to wear a crazy outfit to the run if you reach your goal
8. Send a personal video message explaining why you're participating and why dystonia research is important to you.  Don't forget to ask people to donate
9. Provide updates.  Let people know how close you are to reaching your goal.
10. Thank every one who donates and let them know they've helped make a difference
11. Find out if your company has a gift matching program and whether they will match the amount of money you've collected.  If they do you might double your pledges.