Chuck's Run for Dystonia - 5 km. Run/Walk

Chuck Saundercook

 Sunday, June 7, 2015
Registration: 9:00 a.m. to 10:45 a.m.
Run/Walk: 11:00 a.m. sharp
Location: High Park, Toronto

The Dystonia Medical Research Foundation Canada invites you to participate in Chuck's Run for Dystonia 5Km Run/Walk at High Park. 

In 2012 the DMRF Canada annual Freedom to Move for Dystonia 5 km Walk/Run was named “Chuck’s Run for Dystonia” after Charles (Chuck) Saundercook who was diagnosed in 1972 with generalized dystonia at the age of 12. In 1978 Chuck became one of the first Canadians to receive deep brain stimulation. He improved with the procedure but developed pneumonia and in his weakened state, died at age 16. In his final chapter, Chuck donated his body and brain to help others in furthering dystonia research. Since then the entire Saundercook family have been enduring supporters of dystonia awareness and research. 


Click Here to Register or Volunteer


2. By phone:  416-488-6974

3. At event - Please arrive at Registration before 10:30 a.m.
4. Mail to: DMRFC,305-121 Richmond St. W. Toronto, ON , M5H 2K1






Winners - Top 3 by category:

Boys & Girls (under 13)
Young People, Males/Females (ages 14-19)
Men & Ladies (ages 20 - 39)
Men & Ladies (ages 40 - 54)

Men & Ladies (ages 55 +)





The Don Valley Parkway and Gardener Expressway will be closed. If you are in the vicinity of Hwy 401 you can take from the East:

401 West to400/ Black Creek Drive
Black Creek Road South to the end at Weston Rd.
Veer left onto Weston Road South
Take Weston Road until it turns into Keele Street
Keel Street to Bloor Street
Turn right onto Bloor Street
Drive to High Park entrance turn left

From the West: 410 East to Weston Rd. S.

Take Weston Road until it turns into Keele Street
Keel Street to Bloor Street
Turn right onto Bloor Street
Drive to High Park entrance turn left





Diane Gillespie, Executive Director, Bill Saundercook, Honourary Co-Chair, David Jaakkola,


             Spencer Clough and Matthew Sheppard, Youth Ambassadors,

Bill Saundercook, Honourary Co-Chair

Fundraising Tips

While taking part in Chuck's Run for Dystonia is great support for the cause, we also hope you can raise critical research dollars by collecting pledges.  Start by setting up a pledge page on the running room site so people can donate to you electronically. It's simple to set-up and donating becomes as easy as the click of a mouse!  Once your page is set up, you can begin fundraising.  Here are some tips to make raising money easier:

1. Start early!  The sooner you start the more you likely will raise.
2. Send an email to friends with a live link to your running room pledge page.  Let people know why raising money for dystonia is important to you. 
3. Keep a pledge sheet with you at all times and ask one person a day to sponsor you.  Collect the money at the time a pledge is made.
4. Let people know that any amount helps!  No donation is too small.
5. Use social media to link to your fundraising page and ask friends to share the link
6. Set a fundraising goal and use social media to share it
7. Motivate friends, family and co-workers to donate by promising to wear a crazy outfit to the run if you reach your goal
8. Send a personal video message explaining why you're participating and why dystonia research is important to you.  Don't forget to ask people to donate
9. Provide updates.  Let people know how close you are to reaching your goal.
10. Thank every one who donates and let them know they've helped make a difference
11. Find out if your company has a gift matching program and whether they will match the amount of money you've collected.  If they do you might double your pledges.

Thanks again for all your help.  We can't do it with you!  Let us know what your best strategy is for raising pledges!