DMRF Canada Special Ambassador invites You to Chuck's Run
Date (Toronto, ON) – Unsung hero, thirty-one year old Franco Mazzella suffers constant pain caused by Myoclonus Dystonia, a rare form of dystonia, a debilitating neurological disorder that h
Support Groups
Sudburians Walk For Dystonia
Posted By RACHEL PUNCH, THE SUDBURY STAR: Mother of three Corinne Fewster-Gagne knew something was wrong with her infant son when he was about three-months-old."If he was awake, he was crying," Fewster-Gagne said. His fists and arms were clenched tight and weren't moving. "If I put him under a mobile he would just lay there all stiff. I knew something was wrong," Fewster-Gagne said.
Kelby's Courage
Simcoe Reformer, Ashley House, Simcoe Reporter. She Lays her head between the cushions of what looks much like a massage table. But you can tell by the way Simcoe teen Kelby Balch,16, clinches her hands together and winces her eyes closed tight that this is no relaxation therapy.
Dr. Andrew Borys Presents to DMRFC Manitoba Support Group
Winnipeg – Dr. Andrew Borys, neurologist at the Winnipeg Movement Disorders Clinic, gave an interesting and wide ranging presentation to the DMRFC Manitoba Support Group in which he spoke of the genetic influences on dystonia; the DYT1 gene; the interplay of the cortex, cerebellum and basal ganglia in the brain as they pertain to sensory feedback with dystonia and other movement disorders.