What's Making News

February 6, 2018 - 12:13pm

As a proud member of Neurological Health Charities Canada (NHCC), DMRF Canada is pleased to present an opinion piece in the Globe and Mail that speaks to the urgent need for additional research funding and more supports provided to individuals dealing with neurological conditions in Canada. Read the article here.

February 4, 2018 - 6:44am

Approval is based on the first large-scale neurotoxin trial to demonstrate meaningful functional improvement in pediatric lower limb spasticity

The Ipsen Biopharmaceuticals Canada Inc., the Canadian affiliate of Ipsen (EURONEXT PARIS: IPN) (ADR: IPSEY) today announced that Health Canada has approved DYSPORT THERAPEUTIC™ (abobotulinumtoxinA) for the treatment of lower limb spasticity in pediatric patients two years of age and older.

February 4, 2018 - 6:36am

What is Chucks Run, Walk and Wheel for Dystonia?

The Chuck’s Run, Walk and Wheel 5KM for dystonia is a fun, family-friendly event, hosted at High Park, Toronto on Sunday, June 3, 2018 to raise awareness and funds for dystonia, a neurological movement disorder.

Registration: $39 or fundraise $125 and waive your registration fee.

January 24, 2018 - 12:55pm

Novel sophisticated research tools are providing investigators new ways to explore the genetics of dystonia. Researchers have the ability to quickly sequence individual genes, analyze whole genomes, and analyze gene expression patterns. Individuals and families who volunteer for genetic studies contribute invaluably to research progress.

January 17, 2018 - 1:48pm

A team of investigators led by William Dauer, MD of University of Michigan has made new discoveries about DYT6 dystonia, which affects children. DYT6 dystonia occurs when the body cannot properly produce a protein called THAP1, whose role and function in cells is unknown. Using a mouse model, Dr. Dauer and colleagues discovered that THAP1 is essential for myelination, a process during brain development that forms a protective coating around neurons.