Resources for Parents of Children Who Have Dystonia

Resources for Parents of Children Who Have Dystonia

Being a parent of a child (or children) who have dystonia can be extremely difficult, isolating, and stressful. If you are interested in joining a group for other parents in your situation, please consider joining our support group.

As well, there are other links/ resources available:

Dystonia Guide Books: 

  • Click here for our Dystonia Guidebook for Kids (ages 8 - 12)
  • Click here for our Dystonia Guidebook for Teens (ages 13+)

Information from the Hospital for Sick Children: 

Frequently Asked Questions from kids who have dystonia