Online Support for Parents of Canadian Children with Dystonia

An online support group for parents of children diagnosed with dystonia. For additional details and resources specifically for children and teens with dystonia click here.

For a listing of Pediatric Neurologists or other specialists who treat children suffering from dystonia, please see below. If you have additions to this list, please email: stefanieince@dystoniacanada.org.

NOTE: You will ne​ed a referral from a doctor to get an appointment with a specialist listed below.

Leaders / Contact
Name
Stefanie Ince, Executive Director DMRF Canada
Local Medical Professionals / Movement Disorder Specialists
Name
Dr. Genevieve Bernard, Pediatric Neurologist, Department of Medical Genetics, Montreal Children’s Hospital
Address
The Montreal Children's Hospital 1001 Boulevard Décarie Montréal, QC H4A 3J1
Email
genevieve.bernard@mcgill.ca
Phone
514 412-4400
Name
Dr. Brandon Meaney, Associate Professor of Pediatrics and Division Head of Neurology, Department of Pediatrics, McMaster University
Address
Health Sciences Centre, Room 3N11, Hamilton, ON L8S 4K1
Email
meaneyb@mcmaster.ca
Phone
905-521-2100
Name
Dr. Adam Kirton, Pediatric Neurologist, Alberta Children’s Hospital
Address
Division of Neurology, Room C4-334 Alberta Children's Hospital 2888 Shaganappi Trail NW, Calgary, AB T3B 6A8
Email
adam.kirton@ahs.ca
Phone
(403) 955-7816
Name
Dr Robert Munn, Pediactric Neurologist
Address
1100 Sheppard Ave E, North York, ON M2K 2W1
Phone
(416) 225-1512
Name
Dr. Craig Campbell, Paediatrician, Paediatric Neurology Clinic, Children’s Hospital, London Health Sciences Centre
Address
800 Commissioners Rd. E., Rm. B1-437 London, Ontario, Canada,
Email
craig.campbell@lhsc.on.ca
Phone
(519) 685-8500, x 58332
Name
BC Children's Hospital (See link below for names of specialists)
Address
4480 Oak Street, Room K3-143 Vancouver, BC V6H 3V4
Phone
Phone: (604) 875-2345 Neurology ext. 2121 Neurosurgery ext. 2094​
Name
BC Children's Hospital (See link below for names of specialists)
Address
4480 Oak Street, Room K3-143 Vancouver, BC V6H 3V4
Phone
Phone: (604) 875-2345 Neurology ext. 2121 Neurosurgery ext. 2094​
Name
Dr. Darlene Fehling, Senior Clinician Scientist Bloorview Childrens Hospital Foundation Chair in Developmental Paediatrics
Address
Bloorview Kids Rehabilitation Hospital 150 Kilgour Road Toronto, Ontario M4G 1R8
Email
dfehlings@hollandbloorview.ca
Phone
dfehlings@hollandbloorview.ca
Name
Dr. Hema Gangam, Pediactric Neurologist
Address
1670 Wyandotte Street East, Uint 3, Windsor, Ontario, N8Y 1C7
Phone
(519) 973-1133

DMRF Canada does not endorse any specialist or course of treatment and encourages you to consult your physician regarding your unique requirements.