DMRF Canada Support Groups and local contacts provide an opportunity for people with dystonia to come together - they can reach out and help one another, learn more about dystonia through education, guest speakers, help raise the profile of dystonia through awareness programs and contribute to research through local fundraising efforts.
- Support Groups and Support Leaders by City/Province
- Support Contacts by Dystonia Type
Laryngeal Dystonia(Spasmodic Dysphonia)
Writer’s Cramp (Hand Dystonia)
Neurological and Metabolic Diseases
Focal Hand Dystonia in Musicians
Dopa-responsive dystoniaParoxysmal Dystonia and Dyskinesias
- Online Support Groups
For online support groups, click here.
- List of Medical Professionals Treating Dystonia
Click here for a list of professionals by the Canadian Movement Disorders Group.
Click here for a list of pediatric neurologists in Canada.
Click here for a list of healthcare professionals with experience in treating people with spasmodic dysphonia and related voice conditions.
Click the below for DMRF Canada's list of movement disorder specialists, neurologists, neurosurgeons, physiatrists, and other professionals who treat dystonia.
Please note: This is not a comprehensive list. If you are a physician and would like to join this list or report any inaccuracies, please email info@dystoniacanada.org
- List of Mental Health Organizations and Support
For a listing of Mental Health Organizations and Support Click Here
- Want to Lead a Support Group
DMRF Canada is currently recruiting for Support Group Leaders and participants across the country. To learn more about what it takes to be a Support Group Leader, click on the job description below, or email Archana Castelino, National Director: archanacastelino@dystoniacanada.org
You can view our Support Group Leader Volunteer Job Description here.
You can view some resources on fundraising as a support group leader here.
Check out our Dystonia Support Group Video on our Youtube channel.