When a Child is Diagnosed - Resources for Families

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When a child is diagnosed with dystonia, parents may not know where to turn.

There are Resources to Help You: 

    Resources and Materials: 

    Meet Other Parents: 

    Help us to do more: Fill out our survey for parents of children who have dystonia, to help us learn more about your unique needs. 

    Pediatric Neurologist Listing: 

    • Consider consulting a pediatric neurologist with training in movement disorders or a movement disorder neurologist who treats children. Upload the PDF below for a list of pediatric specialists in the Country.