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Upcoming Events

Please note this event originally scheduled for June 11, has been postponed to June 25 due to the Air Quality Rating in Toronto.  This decision was made keeping in mind the health and well-being of our community which is of the utmost…

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Dystonia Canada News

June 8, 2023

To Freedom To Move Participants, Sponsors, Volunteers, Vendors and Community Partners

We have been counting down the days until we could all be together in person again at this year’s Freedom to Move: Run, Walk and Wheel for Dystonia, that was scheduled to take place at Downsview Park in Toronto on Sunday, June 11th. 

April 17, 2023

With the support of a very generous donor, DMRF Canada is facilitating a one-year, multi-center research project that will aim to validate a clinical and deep learning-based tool for recognition assessment and monitoring of complex movement disorders in dystonia patients.

“If successfully completed, this project will provide a dynamic system for unbiased diagnosis and clinical evaluation of dystonia and other movement disorders.” - DMRF Chief Scientific Advisor Jan Teller

January 19, 2023

Nationwide Survey of Patients and Families: Access to Deep Brain Stimulation Surgery

Deep brain stimulation (DBS) is a surgical treatment available to some patients with certain motor disorders (Parkinson's Disease, essential tremor, primary dystonia) where a small device is implanted within the brain to help treat symptoms. A thorough assessment by a multidisciplinary team determines candidacy for this surgical treatment, as not all patients with these diagnoses would benefit from this therapy.

What is this survey about?