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Dystonia often impacts every aspect of a person’s life, and learning to live with dystonia can be a profound adjustment. Many people with dystonia describe the process of diagnosis and everyday coping as riding a rollercoaster with dramatic ups and downs. Despite the challenges of living with the disorder, members of the dystonia community are resilient, inspiring people.
 

Related News Headlines

  • Sudburians Walk For Dystonia

    Posted By RACHEL PUNCH, THE SUDBURY STAR: Mother of three Corinne Fewster-Gagne knew something was wrong with her infant son when he was about three-months-old."If he was awake, he was crying," Fewster-Gagne said. His fists and arms were clenched tight and weren't moving. "If I put him under a mobile he would just lay there all stiff. I knew something was wrong," Fewster-Gagne said.

  • DMRF Canada-Edmonton creates Yogatonia

    Edmonton, Connie Zalmanowitz DMRF Canada Board Member announces a unique Introduction to Yoga for those Living with Dystonia program.  This program has been made possible through the efforts of  the Edmonton Support Group and the Alberta Government. The classes will be held  January 23, 2010, February 20, March 27, April 17, May 29.1:30 p.m.  to 3:30 p.m. For more information CLICK HERE

  • Kelby's Courage

    Simcoe Reformer, Ashley House, Simcoe Reporter.  She Lays her head between the cushions of what looks much like a massage table. But you can tell by the way Simcoe teen Kelby Balch,16, clinches her hands together and winces her eyes closed tight that this is no relaxation therapy.

  • Dr. Andrew Borys Presents to DMRFC Manitoba Support Group

    Winnipeg – Dr. Andrew Borys, neurologist at the Winnipeg Movement Disorders Clinic, gave an interesting and wide ranging presentation to the DMRFC Manitoba Support Group in which he spoke of the genetic influences on dystonia; the DYT1 gene; the interplay of the cortex, cerebellum and basal ganglia in the brain as they pertain to sensory feedback with dystonia and other movement disorders.