What's New in Research
 

The Dystonia Coalition - Collaberation of Dystonias Researchers & Patient Advocacy Groups

 The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups supported by the Office of Rare Disease Research and The National Institute of Neurological Disorders and Stroke at the NIH. There are more than 30 participating centers distributed throughout North America and Europe.   Including the University of Toronto.

Feinstein Scientists Identify Disease Pathway in Dystonia

Manhasset, NY (Vocus/PRWEB) April 14, 2011,
A team of scientists at The Feinstein Institute for Medical Research have figured out why some people with a gene that causes dystonia never get symptoms and others with the same mutation are disabled by the abnormal movements.

For potentially crippling dystonia, earlier deep brain therapy gets better, quicker results

LOS ANGELES (March 29, 2011) – Patients suffering from dystonia, an uncommon yet potentially crippling movement disorder, get better results if they begin deep brain stimulation therapy sooner rather than later, according to an international study published in the March issue of the Journal of Neurology.  

 

 

What's Making News

The Movement Disorder that Robs you of Control
December 23, 2011 - 11:07am

The Globe and Mail - Adriana Barton - Mathew Sheppard can spend hours playing the video gam Minecraft, but he has trouble pouring water into a glass.  Like other 13 year old boys, he loves hurtling through nature on an ATV.  But when a waitress asks for his order, be blinks uncontrollably and shakes all over.  Matthew has dystonia, a movement disorder that casused involuntary muscle contractions and spasms. More

Dystonia Music Night Ends on a High Note
Dunnville natives Sean Dowhaniuk and Aubrey Wilson returned to Flyer?s Cafe on Saturday Oct. 15, 2011 to perform at the Queen St
October 25, 2011 - 3:39pm

By Matt Day, The Chronicle-Fran Porter came to Dunnville five years ago and always heard about the Dystonia Buskerfest which was held each year in the Sobeys foyer, but she never had the opportunity to go. MORE

Billy McLaughlin and Dystonia on Canada AM
October 25, 2011 - 2:03pm

Dr. Marla Shapiro and Beverly Thompson interviewed Billy McLaughlin today on Canada AM on CTV.  McLaughlin, a world class guitarist, DMRF Ambassador and Board Member described his experiences with Musicians focal hand dystonia. Dr. Shapiro provided an overview of dystonia and its many forms.  Click Here to View the Interview

Deseronto Couple Brink Attention to Dystonia at Toronto 5K Run/Walk
June 3, 2011 - 2:06pm

By Stephen Petrick/Napanee Guide, At first they noticed his eyes blinking more. Next his facial features started to sag. In time he couldn't move without staggering. Now he slurs his words when he speaks. Deseronto couple Beth Fisher and Michael Stevens say their lives have become extraordinarily more challenging ever since Stevens began showing symptoms of Dystonia about three and a half years ago. More

Thomas Wade - Country musician battles through dsytonia to keep career alive
Musician Thomas Wade, who will turn 50 next week, said that, with a technique he discovered through his research, he has "reform
May 5, 2011 - 12:06pm
The Expositor, Brantford, Ontario - Michelle Ruby - In the late 1990s, Thomas Wade was living his dream. The boy from Burford who had played every county fair and local smoke-filled barroom, years before he could legally have a drink there, had finally hit the big time.
 
He was the charismatic front man of Thomas Wade and Wayward, whose 1996 eponymous debut album spawned no fewer than seven singles on the Canadian Country Music chart. (To listen to Thomas Wade's performance at the Hamilton Area Music night CLICK HERE)
 
 Read More of the Expositor article.