TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.
In May 2016, DMRF Founders Frances and Samuel Beltzberg were recognized by Simon Fraser University with the 2016 President's Distinguished Community Leadership Award.
In addition to founding the Dystonia Medical Research Foundation 40 years ago, the Belzberg's have demonstrated an outstanding commitment to education, human rights, health care and the arts. Their shared vision and lifetime of service, community engagement and philanthropy has profoundly improved the overall well-being of community-oriented organizations that make a difference both locally and internationally.
The Dystonia Coalition is conducting a study to develop the best way to measure the symptoms and impact of blepharospasm.
This study is being conducted at Toronto Western Hospital by Dr. Susan Fox
For details on the study and eligibility criteria please click poster