Dystonia Children & Family Symposium Interviews

 

What's New in Research

The Dystonia Coalition - Collaberation of Dystonias Researchers & Patient Advocacy Groups

 The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups supported by the Office of Rare Disease Research and The National Institute of Neurological Disorders and Stroke at the NIH. There are more than 30 participating centers distributed throughout North America and Europe.   Including the University of Toronto.

The Dystonia Coalition intends an open-door policy in which new investigators and institutions may join the effort at any time. Each of these centers may participate in ongoing research projects, submit proposals for new projects, or nominate candidates for career development awards.

Neural tissue contains imbalanced levels of proteins, U-M study finds

June 2, 2010 - ANN ARBOR, Mich. — Why do some diseases affect only specific organs, leaving others invulnerable? Researchers from the University of Michigan have found neural tissue contains imbalanced levels of proteins, which may explain the brain’s susceptibility to a debilitating childhood movement disorder.
 

Movement disorder symptoms are lessened by an antibiotic

Treating worms with ampicillin helps restore normal movement
TUSCALOOSA, Ala. – Discovery of an antibiotic's capacity to improve cell function in laboratory tests is providing movement disorder researchers with leads to more desirable molecules with potentially similar traits, according to University of Alabama scientists co-authoring a paper publishing March 10 in the journal Disease Models & Mechanisms.

  

 

 

What's Making News

June 14, 2010 - 1:09pm

Posted By RACHEL PUNCH, THE SUDBURY STAR: Mother of three Corinne Fewster-Gagne knew something was wrong with her infant son when he was about three-months-old."If he was awake, he was crying," Fewster-Gagne said. His fists and arms were clenched tight and weren't moving. "If I put him under a mobile he would just lay there all stiff. I knew something was wrong," Fewster-Gagne said.

March 10, 2010 - 1:00am

By Doug Ward, Vancouver SunMarch 11, 2010

'Spark becomes flame': The torch makes its entrance into            Vancouver. Twenty-two carriers make the circuit around Riley Park

February 17, 2010 - 1:00am

Sam Belzberg, DMRF Canada Co-Founder  and President was honoured in Vancouver as an official Torch Bearer running up to the 2010 Vancouver Olympics. Also shown is Mr. Belzberg's wife, DMRF Canada Co-Founder and Vice President Fran Belzberg holding the torch.  This is truly a deserving honour for the Belzbergs

November 6, 2009 - 10:28am

Guy Dixon From Saturday's Globe and Mail

For many years, Liona Boyd had something distressing happening to her hand, specifically to her right middle finger, and it was only getting worse.

October 14, 2009 - 11:32am

Alex, 27, appeared on The Doctors and shared her struggle with dystonia, a neurological movement disorder that causes muscles to contract and spasm involuntarily. The muscle contractions force Alex's body into repetitive and often twisting movements, as well as awkward, irregular postures.