Dystonia Information Materials

Thank you to Dystonia Medical Research Foundation (USA) for allowing us to share this information. 

Please note that some information may be USA-based and may contain information not relevant to Canada.

Downloadable Dystonia Informational Packages 

Going Forward: Dystonia information package for newly diagnosed (Printed version available upon request)

Dystonia Symptoms Informational Poster (Printed version available upon request)

Guidebook for Teens with Dystonia (Printed version available upon request)

Dystonia Survey Report: Real Patients, Real Answers (Printed version available upon request)

Dystonia & Aging

Downloadable Fact Sheets

Understanding Dystonia 

Dystonia, A Movement Disorder 

Burden of Dystonia is More than a Movement Disorder: Non-Motor Symptoms  (Printed version available upon request)

Dystonia and Social Anxiety 

Genetics of Dystonia 

Dystonia and Traumatic Brain Injury 

X-Linked Dystonia-Parkinsonism 

Musician's Dystonia 

Red Light, Green Light! - Fact Sheet for Children 

What is Myoclonus-Dystonia? 

Living Well with Myoclonus-Dystonia

Genetics of Myoclonus-Dystonia 

Myoclonus-Dystonia and Alcohol 

Downloadable Dystonia Brochures

'What Is Dystonia?' Brochure (Printed brochures available upon request)

Dystonia of the Hand Brochure (Printed brochures available upon request)

Blepharospasm Dystonia Brochure (Printed brochures available upon request)

Cervical dystonia (spasmodic torticollis) Brochure (Printed brochures available upon request)

Deep Brain Stimulation Brochure (Printed brochures available upon request)

Functional (Psychogenic) Dystonia Brochure (Printed brochures available upon request)

Generalized Dystonia Brochure (Printed brochures available upon request)

Laryngeal Dystonia (Spasmodic Dysphonia) Brochure (Printed brochures available upon request)

Focal Hand Dystonia (Writers Cramp)  (Printed brochures available upon request)

Lower Limb Dystonia 

Oromandibular Dystonia 

 

Other Resources:

Never Look Down - A book to help inform your child's teachers and school administrators. Consider the best way to help your child's friends and peers understand dystonia.

Email: info@dystoniacanada.org to request your copy today. 

Last update: Jul 2023