Do It For Dystonia

Submitted by archana on October 15, 2019 - 1:26pm

Do you want to support the dystonia community? Do you have a hobby or special interest you love doing? Need that push to try something new? Here’s an opportunity to let yourself shine while raising funds and awareness for dystonia.

This year, DMRF Canada wants to see you ‘Do It for Dystonia’!  

About The Campaign: 

The spirit of this campaign is to empower people to put their passions, skills, and talents on display in order to raise awareness and funds for dystonia. We want to celebrate how individuals with dystonia succeed in all aspects of life. It can be either something you love to do or something you haven’t tried yet. It can be anything you want it to be! All that matters is that you do it for dystonia – and for yourself.

How To Participate:

  • Tell your family and friends, as well as DMRF Canada of your plans, and share your journey using the hashtag #doit4dystonia
  • Join the Facebook Group DoIt4Dystonia (Link to be made available soon) so that you can draw inspiration from others and keep each other motivated!

Here are some great ideas from other dystonia advocates around the world who you can draw inspiration from: 


Facebook Birthday Fundraiser

Laurie from Hamilton, Ontario held a birthday fundraiser on Facebook, collecting funds for dystonia research.



Birthday fundraiser




Cycling for Dystonia

A dystonia warrior fundraised for dystonia by cycling 25 miles around a lake in the UK. Cervical Dystonia had threatened to halt her efforts to lead a normal life. Her partner, and daughter, joined her in the challenge.



Dogs for Dystonia

A dystonia thriver in the USA led a dogs4Dystonia Walk to have dogs walk for dystonia!   Participants were not required to have a dog to participate – all that was required was a love of dogs and a love of walking. Members of the local Dystonia Support Group in the area were also able to meet each other in a fun and relaxing environment.




Lemonade Stand for Dystonia

A dystonia supporter in Toronto, ran a Lemonade Stand in September 2017 for Dystonia Awareness Month. Her lemonade stand helped to raise funds and awareness at the same time while also delivering a refreshing glass of lemonade to her visitors.



Mixed Fundraisers

A dystonia champion in the UK raised funds for dystonia by tackling several challenges at once. She put collection boxes in local businesses, hosted three tea parties, sold baked goods, and organized a raffle. 

Tea cup                    Macarons

24-hour Swim Marathon

Though this fundraiser was in 1978, it can still be done today! In memory of Chuck Saundercook, this 24-hour marathon was organized by his 15-year-old sister Jane. She even got family and friends to join. Approximately 24 friends and family joined her too, logged 37 miles in a pool and raised $12,000. In celebration, they all jumped into the pool with her after the achievement.

Jumping into pool


Fundraise Online

DMRF Canada is excited to provide a virtual platform for individuals to curate their own unique campaigns – by ‘doing it’ for dystonia. You can use the links below to create your own page for fundraising and raise funds online.

Facebook                             CanadaHelps

Facebook                   Canada Helps 

You can also tag us @ dystonia_canada on Twitter and @DMRFC on Facebook and @ dystonia_canada.

Here are some simple steps/tips for fundraising:

1. Set Your GoalSet an amount you would like to raise and share that publicly. 
2. Design Your Page: Describe what you will do and why you are doing it. 
3. Tell Them Where The Money Will Go: Pass on this '2019 Accomplishments and Updates' that provides information and updates so far this year.
4. Message Your Networks: Email or share your page to motivate friends, family, and co-workers to donate. Use hashtag #doitfordystonia
5. Say Thank You: Provide updates.  Let people know how close you are to reaching your goal. Thank everyone who donates and let them know they've helped make a difference.

Offline Fundraising

All offline donations can be sent to DMRF Canada, 209 - 550 St. Clair Ave. West, Toronto, Ontario, M6C 1A5 Canada. Click here to use our template pledge sheet for collecting and tracking of donations in person. 



With this campaign, you’ll be tackling your own individual challenges, inspiring others, raising much-needed awareness of dystonia – and inspiring others!  Plus you can win great prizes!

DMRF Canada will feature the top five ‘Do It for Dystonia’ fundraisers in the Spring 2021 Newsletter. Please submit your story, along with campaign details by January, 2021.  

For any questions, kindly email us at info@dystoniacanada. We wish you luck. Happy fundraising!