Dystonia Canada News

The Dystonia Medical Research Foundation is pleased to announce a Call for Applications for research proposals on Clinical and Basic Aspects of Dystonia.

Letters of Intent are due by end of day on Monday, September 9. Letters should be no more than 1 page and should include a summary of the proposed research as well as names and affiliations of participating researchers. 

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Dystonia Research Extra Access 2021. A DMRF hosted dystonia research update with a distinguished panel: Scientific Director Joel S. Perlmutter, MD and Medical & Scientific Advisory Council Members Ellen Hess, PhD and Aasef Shaikh, MD PhD.

DMRF Canada is thrilled to announce support of the research project: “Mechanisms of Action of DBS for Dystonia: Cholinergic Contributions to Plasticity.” By Drs. Zelma Kiss and Davide Martino at Departments of Clinical Neurosciences, Hotchkiss Brain Institute, University of Calgary. DMRF Canada has committed to fund this grant, valued at $50,000 as one of two ‘Better Clinical Treatment Grants’ supported this year.

Dystonia in childhood is a movement disorder that causes uncontrollable muscle contractions. These muscle contractions result in twisting, repetitive movements and abnormal postures. The movements and postures may be chronic or occur in episodes. Symptoms can vary with body position, specific tasks, emotions, and state of consciousness.

Diagnosing dystonia in children is complex and requires careful evaluation by experts in pediatric movement disorders. Childhood dystonia often occurs as a symptom of an underlying brain disorder.

“DMRF Canada is proud to once again to be able offer this opportunity to a worthy candidate who has already demonstrated dedication and passion for the movement disorders field,” said Bill Saundercook, Chair, DMRF Canada. “We know that proper evaluation by a movement disorder neurologist can make a significant difference in terms of the treatment options available to dystonia patients and the corresponding benefit from treatment. Read more...

Join the Dystonia Community: Walk, Run and Wheel for a Cure: on Sunday June 2, 2019, High Park, Toronto

Join the Dystonia Community: Walk, Run and Wheel for a Cure: on Sunday June 2, 2019, High Park, Toronto

DMRF Canada is committed to helping you live your best life with dystonia. 

The next time you are visiting your movement disorder specialist, look out for the Dystonia Wellness Checklist. This is a short test that asks questions about your well being to identify areas where you may need additional support.  

See below for some tips on how to live well with Dystonia:

DMRF Canada was thrilled with the results of our recent 2019 neurotoxin survey. We had close to 300 responses from individuals from all over the country.

A very sincere thank you to anyone who took the time to answer this survey.  This information will be used by DMRF Canada to help to improve the dystonia patient experience, and we appreciate your honesty and feedback. 

Congratulations to the following Grand Prize Winners. These lucky individuals will receive a $500 gift card from VISA:

Tracy H from Dresden, ON