Jean Sharon Abbott spent nearly all of her life believing she had an incurable condition that left her feeling "trapped" in her own body -- unaware that many of her symptoms could be easily treated with a pill.
Read more...Dystonia Canada News
April 21, 2015
Published on Mar 18, 2015
In Edmonton, AMI's Keith Gillard visits author Brenda Currey Lewis who was diagnosed with generalized dystonia when she was seven years old. Now as an adult, she's written a book about what it was like to grow up with an unusual disability.
Watch this You Tube video with Brenda Lewis discussing her journey with dystonia.
Read more... April 1, 2015
DMRF Canada is very pleased to announce the formation of the Vancouver Support Group with Co-Leaders Jackson Mooney and Robin Krantz.
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March 13, 2015
Wency Leung-The Globe and Mail. Joaquin Farias has spent the past two decades trying to understand dystonia, a confounding and sometimes debilitating syndrome believed to be the third-most-common neurological movement disorder, after essential tremor and Parkinson’s disease.
http://www.theglobeandmail.com/life/health-and-fitness/health/using-the-brain-to-retrain-the-body-to-overcome-dystonia/article23342529/
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December 3, 2014
The DMRF Canada Manitoba Support Group recently participated in a rond-table discussion on dystonia. Read more...
August 11, 2014
Edmonton Sun: Cam Tait, July 23, 2014 Local author is continuing to create her autobiography A Twisted Fate.
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May 27, 2014
Date (Toronto, ON) – Unsung hero, thirty-one year old Franco Mazzella suffers constant pain caused by Myoclonus Dystonia, a rare form of dystonia, a debilitating neurological disorder that h Read more...
May 21, 2014
Oakville Beaver - Jon Kuiperij - Even when he was at a competitive disadvantage, Spencer Clough always held his own against other snowboarders. Now that he’s exclusively racing against fellow adaptive athletes, the 17-year-old St. Thomas Aquinas high school student is quickly realizing the sport might provide him with much more than an occasional medal. It may even take him to the Paralympics. More
Read more... March 19, 2014
For anyone who has thought about donating to a charity but hasn't yet found the time or will to do so, this might be the year to finally commit. Read more...
September 19, 2013
A CityNews report about a teen who had brain surgery to treat a neurological disorder is being honoured by the Canadian Medical Association (CMA).
Reporter Avery Haines and editor Shayla Scott received a special mention for the CMA’s Media Awards for Health for an August 2012 story on Mathew Sheppard, a 13-year-old with myoclonus-dystonia. More
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