Dystonia Canada News

September 19, 2013

(CNN) -- Lori Raines and her mother were hunting for deals at post-Christmas sales in 2009 when Raines' left leg involuntarily turned inward and an excruciating pain shot through it.

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May 31, 2013
CALL TO ACTION! Address the funding cuts to Centre for Movement Disorders in Markham, Ontario, by participating in our letter-writing campaign to the government, calling for a Movement Disorder Strategy in Ontario. Read more...
May 27, 2013

Dr. Guttman, Director of the Centre for Movement Disorders (CFMD) in Markham, Ontario, recently announced the CFMD will be closing effective August 31st, 2013, as a result of the Ministry of Health and Long-Term Care’s (MOHLTC) decision to cut support for the multi-disciplinary team that provides on-going services to this clinic. MORE

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May 8, 2013

(TORONTO, ON) -- Snowboard cross gold medalist and Paralympian hopeful Spencer Clough, has been named Youth Ambassador for the 2013 Chuck’s 5 km Run/Walk taking place on June 2, 2013 and supporting research through the Dystonia Medical Research Foundation Canada (DMRFC).

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April 11, 2013

Michelle Gamage, 24 hours Vancouver -When the Order of Canada organizers called to ask if he would accept the Governor General’s 2013 Lifetime Artistic Achievement Award, Andrew Dawes thought they had him confused with another person.But there was no mistake. Despite developing focal dystonia, also known as writer’s cramp, in 2006 – which quickly ended his 59 years of performing – the renowned violinist’s years of teaching and 3,000 performances were enough to win him the award.

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March 7, 2013

Parliament of Canada - March is Brain Awareness Month. To kick-off the Month, Kirsty Duncan, MP, read the following statement read in the House on Mar. 1, 2013: 

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March 6, 2013

WENCY LEUNG - The Globe & Mail - Kylee Taylor was distraught. For nearly two years, her teenage son, Kieran Porter, had seen multiple doctors and undergone countless medical tests, but none provided an answer for his alarming and mysterious illness.

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May 24, 2012

By: Heidi Ulrichsen - Sudbury Northern Life Staff - For most of his life, Dwayne Backer has lived with dystonia. For him, that means debilitating muscle spasms and poor fine motor control, preventing him from performing day-to-day tasks such as shaving his own face or writing a grocery list. More

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May 24, 2012

TORONTO - Matthew Sheppard drew attention to dystonia Thursday by offering to help Mayor Rob Ford in his workout regime.

The 13-year-old who suffers from myoclonus dystonia came to City Hall with his mom Cathy and former city councillor Bill Saundercook. Together they invited Ford to take part in the Freedom to Move/Chuck’s 5 km Run/Walk for Dystonia taking place in High Park on June 3. More

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May 7, 2012

A trailblazing Toronto family and their courageous brother are honoured by the Dystonia Medical Research Foundation Canada. To honour a courageous individual and his trailblazing Toronto family, the Dystonia Medical Research Foundation Canada (DMRF Canada) announced today its 2012 Freedom to Move 5 km Run/Walk will be called “Chuck’s Run” in memory of Chuck Saundercook who died from Dystonia-related complications in 1978 at the age of 17.

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